When I had two strokes while working in a high-powered job, it stunned everyone who knew me. It was unexpected. I was very fit; swimming outdoors all year, cycling more than 10 hours a week, and a regular gym-goer. I was a scuba diving instructor in my spare time and didn’t imagine that I would be hit by strokes.
Studies have shown that there are psychological benefits to shared experiences which result in a number of positive influences on emotional wellbeing and connectedness.
Since we launched, we've been lucky to have met some amazing people, whose voice, story and expertise will help many members of our growing community. For that reason, we have created this page to share stories, help people and raise awareness of what is needed in the recovery pathway.
Tamsyn Wood, mum of 4 and carer to her husband Alex, who suffered a severe traumatic brain injury during a rugby training session, describes the recovery pathway as being 'so complicated, navigating a system that you have no idea about until something like this happens to you - then, riddled with grief and trauma, you have to somehow keep it together enough to manage the fall out, with an unfriendly, unyielding system that seems to be in place only for the financially abled to benefit from.'
She hopes that by speaking out about her experience of wife to carer it may resonate with someone out there feeling just as lonely, fraught and frustrated with the care world as she is.