Survivor Stories

Many of you have written to SameYou about your experience of brain injury and told us how you identified with Emilia's story. There was a common feeling of relief about hearing a familiar story from someone young, and speaking out to normalise the injury. People were comforted that Emilia had gone through something similar to them or to a family member or loved one. 

The overwhelming emotion was of gratitude that Emilia was breaking her silence and that enabled and emboldened so many others to tell their brain injury story - some for the first time. It was as if people now have permission to speak out about their story.

I get days when I just want to give up. But after hearing your story it has made me realise, I'm not on my own!

You have told us that by sharing your stories, and reading other people's, offers hope, comfort and much needed peer-to-peer support that is often hard to find. 

SameYou have created this support resource called Portraits to tell the untold story of brain injury. If you would like to share your story, you can submit your story via our Share your story page.

Portrait: Sina-Marie image

Portrait: Sina-Marie

A warm hello from Germany. I'm Sina-Marie, 29 years old and a ruptured brain aneurysm survivor. Since I found out about SameYou, I've wished it would have existed back in 2015 and wanted to tell my story for anybody interested. So here it is...

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Portrait: Julianne image

Portrait: Julianne

My name is Julianne and at 18 weeks pregnant, I was diagnosed with a massive 15mm aneurysm near my occipital nerve. The last four years have been the biggest roller coaster of my life. I now have two sons, Aiden Grey who is three, and Sawyer John who is one, but it was a huge battle getting here.

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Portrait: Kassandra image

Portrait: Kassandra

My name is Kassandra and I suffer from chronic migraine with aura, resulting from two traumatic head injuries. When I was three years old, I fell off a bed and landed on the hardwood floor, on the top of my head. About six months later, I started getting terrible migraines constantly. I was diagnosed with chronic migraine at eight years old.

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Portrait: Emma image

Portrait: Emma

Emma's story highlights how, despite experiencing a stroke and facing multiple life-saving surgeries, she had the courage and determination to rebuild her life. 

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Portrait: Duncan image

Portrait: Duncan

11 years ago, I was a 38-year-old P.E. teacher and father of 2 young children when I collapsed in my bathroom early one morning while getting ready for work...

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Portrait: John image

Portrait: John

My story takes place back in May of 2000 when I was 10 years old. Around 5 pm on a Friday afternoon I started having a bad headache. I told my parents about it and they handed me some Tylenol, assuming it was just my allergies. That didn’t solve the problem.

I later found out that I was experiencing a brain AVM (arteriovenous malformation) - a tangle of blood vessels that connects arteries to veins. It had started to rupture on the left side of my brain causing the pain to get worse. I told my parents I was dying.  

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Portrait: Kerry image

Portrait: Kerry

In 2013, I suffered a ruptured brain aneurysm, like Emilia. It happened out of the blue, just 3 months after my baby was born. I had been experiencing what I would say was a very mild, dull headache for a few days. A bit like a hangover and I couldn’t shift it. 

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Portrait: Tamsyn image

Portrait: Tamsyn

7 years ago, on a Saturday after a night out, I felt unwell. I thought maybe it was a hangover. I went to bed early and woke the next morning with a terrible headache...

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Portrait: Jeff image

Portrait: Jeff

September 14, 2018, according to my MapMyRun, I was around 10 miles in a long run in Cambridge, MA USA when I was struck at a crosswalk by a car going 37 miles per hour.

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Survivor Stories

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